12
Oct
SOS: ‘My Son Is Dying’
When my film WMD opened in St Louis, MO, Sandra Vago, a local activist, helped us promote it. She was great. I met her later at the Media Reform Conference in that city and was impressed with her passion on the media issue and concern for veterans.
Yesterday, I heard from Sandra in this disturbing and shocking letter. Obviously, I don’t have all the details or the ability to assess a medical condition, but this sounds dire. Can anyone help?
Over the past 3 weeks my son, Scott Martin in St. Louis, has been diagnosed with Miller Fisher Gillian-Barre and Freund’s Adjuvant. He began experiencing strange symptoms, feeling weak, double vision, numbness. At first he thought it was just a flu and insisted he’d be fine, he was getting ready to start classes for his final 2 months of school. After 2 days he was worse and I drove him to St. John’s Mercy Hospital where they admitted him, he could not walk by then without help and his vision was very poor.
Within three days of being in the hospital, they had run numerous tests and kept asking if he “sniffed glue”, which he never did. They told me he was legally blind and there was nothing they could do or explain it. His motor skills were all but gone, he was shaking and could not drink or eat without spilling things nor walk or turn his head from side to side. his was also beginning to have paralysis on the right side. I began plans to move him to another hospital and was constantly researching the internet when the Doctor he had who was covering for the doctor who has still never seen him, came and told us he had the afore mentioned disease. She was sure of it. She (Dr. Kos) said if we moved him they would have to start all over and he might die, that he needed Plasma Transfer, where they remove the blood, cleanse it, separate the plasma, replace it with man made plasma and 205 human and they do this 5 times in 10 days. She said and I quote, “I can cure him”.
I left him there, signed the forms and went back on the internet. What I found scared me worse than before since I realized this was connected to a weaponized virus made my our own scientists here in the U.S. in the late 40’s early 50’s and actually tested on Americans and Canadians. It was then sold to Saddam Hussein during the Reagan years to fight Iran. MYCOPLASMA — the linking of Pathogen in Neurosystemic Diseases. Several strains of mycoplasma have been “engineered” to become dangerous. Pathogenic Mycoplasma is a common disease agent weaponized through biological warfare and tested on unsuspecting public in North America. (They didn’t tell me this, they don’t tell me anything, I had to find out through research.)
I was then told that my son had Freund’s Adjuvant. By that time I had found Dr. H. Hugh Fudenberg ( information in letter attached). You can use whatever you like or check facts on that connection. So far everything he told through our correspondence has been corroborated as my son’s case just goes on and on. As with the new treatments they have just asked me to sign for, an additional (but as they have explained - very dangerous set of these same plasma transfers) as well as now adding the immunoglobulin doses, weakening his immune system to stop the virus but it could also increase his threat of death from infections.
How did he get this? Where did he get this? Can anyone of us be susceptible to this virus if we have weak immune systems? Is it out there? Are these men and women suffering from Gulf War Syndrome, carrying around this virus in a weaker form from being vaccinated — forcibly — by the government?
The 1st Bush Administration knew this virus, this chemical had been sold to Saddam Hussein, Rumsfeld worked for Reagan when it was done, is that why they were vaccinating these men and women with a weak version of this same thing? What do we really know and what are we all in the dark about when it comes to what our government actually supplied to these foreign countries that we now call “axis of evil” who gave them the ability to do these things? Why is my son dying here in St. Louis from this?
Isn’t it time we all start demanding answers?!
so sorry to hear about this mans sudden disease. my heart goes out to you and yours. i recently read the book called “lab 257″ which describes the goverments germ-weapons research on an island on the east coast, called plum island. many viruses and diseases that are either unknown to our current population or fabricated for virulance in large doses have come out of this lab. there are many others around the country that are working on “top secret” strains of bacteria and virus that can be used for weapons of mass destruction. russia has done this openly for decades, the us has also, but only covertly. someone in journalism must take on exposing this diabolical plan by our own government to use these agents for weapons. read the book and pass it on to a friend. we must certainly be more informed that we currently are!!
October 12th, 2005 at 11:58 amPerhaps Dr. Horowitz should be interviewed since he is a leading expert on concocted viruses?
October 13th, 2005 at 11:12 amCheck the Garth Nicolson website for treatment info.
November 20th, 2005 at 11:23 pmI too am sorry to hear about your husband’s condition.
I contacted the Miller Fisher variant of Gillian-Barre Syndrome about 15 years ago. When I was first diagnosed with it, I was about 10 days into antibiotics for a strep infection. I was hospitalized for 5 days and it took me about a month before I could go back to work (I’m a legal secretary now for over 31 years). I also had polio as a child. It’s also my understanding that the disease takes 3 days to come on. The first day the tips of my feet and the tips of my fingers were numb, but not painfully so. Just kind of a nuisance. It was a Friday and this was back in my drinking days. I woke up on Saturday morning and was numb down to my knuckles on both hands and to the ball of my feet. It was getting a little difficult to get around, but not painful just kind of awkward. I had to steady myself once in a while when I walked.
I had called my doctor on Saturday morning and relayed my symptions to the doctor on call, and he advised me to all the office on Monday.
On Sunday morning when I woke up, my hands were numb now down to my wrists, and numb to the heals of my feets. It was increasing more difficult to walk and do anything with my hands. If I held still and looked at my hands, I couldn’t even tell there was anything wrong. With the numbing sensation, you think of what your hand or feet feel like when you sit too long in my spot or lay too long on your arms, when you feel the needles where your limb or limbs are waking up. I again called the doctor on call and was advised that a brain tumor could be ruled out because a tumor usually would not affect “all 4 feet” (Ha!) so to say (meaning my hands and feet).
When I met with my doctor on Monday afternoon, I was advised that I also had no reflexes whatsoever, and I’m not sure exactly what that means or what adverse affect it would have on a person.
Anyway, I was admitted to the hospital that evening and after a spinal tap was done, it was confirmed that I had what I had.
Then this past June 2005, I got really sick fast with a respiratory infection, and when I spit up some really florescent greet phlem, I immediately called and got into the doctor for antibiotics to combat this viral infection or whatever it was I had. Then about 10 days into taking the antiobiotics, I woke up on a Tuesday with the same symptoms I had the first time for the first day. I called my neurologist and asked her if it was possible to get NF/GM Syndrome again and, just my luck, yes you can. By Friday of that week I went from having trouble walking to not being able to walk and/or feed myself by Saturday evening. I was hospitalized for 12 days and had the blood wash done 3 times.
I was advised the first time that they didn’t know if the blood wash actually helped. I was released from the hospital on July 22nd and I am still in the process of recovering.
I would like information as to what other residual effects I might have. I have not returned to work yet, as my self-confidence is shot to “hell” with my employers terminating my employment on August 15, with them knowing that I would be asking my doctor to release me to go back to work on August 31, 2005. I didn’t have any medical insurance, as this was a husband and wife attorney firm, and I was lead to believe that my pay would be increased to include a week’s vacation, etc., and medical insurance was not totally out of the picture. I didn’t get a week’s paid vacation until my 9th year working for them. I also would be interested in who I might talk to about the medical insurance issue and what a person can do to protect themselves from being terminated if you happen to get sick with no insurance offered.
I also feel that having had polio as a child, prohibited me from being more paralized by this disease, but I don’t have any medical confirmation on this as I don’t think any extensive research has been done on this connection. They are both neurological diseases that you have to auto immune from.
I also apologize for being so long winded. Thank you.
January 16th, 2006 at 11:59 pmHello, my name is Steph. I woke up on Jan 25, 2008 with blurry vision and a clumbsy walk. I had a cold and had taked some strong cold medicine and thought this was the cause of my symptoms. I called in sick to my job and went back to bed. By 7:00 pm that night, I could not lift my head off my pillow. I tried to make ot to the bathroom and fell down 2 times. I called my husband (out running kids to activities) and he came home to find me in bed with very swallowen eyes. He called our doctor and they wanted me to be taken to the hospital right away. They were thinking that I was having a stroke. Did I mention that I am a 44 year old mom of 2 girls? Anyway, by the time we reached the hospital, I could not lift my head, keep my eyes open or walk. (11 pm) They did an MRI and CT scan right away. They found nothing. They checked me in. 17 days later I was diagnosed with Miller Fischers/Gillian Barre Syndrom. The finally gave me the diagnosis after they could not find my reflexes! I also had bells-palsey happen in both sides of my face. The weirdest thing to me was that they could not diagnois this this for such a long time. They thought that I had MS, Miastina Gravis, West Nile, a botox reaction, and e coli.
June 24th, 2008 at 11:54 amAfter 3 MRI’s 1 CT scan, 1 spinal tap, 5 treatments of IVIG and 4 blood exchanges, I was released.
I am still in physcial therapy once a week. I still have 2x vision, clumbsy gate, stiffness in my back and neck, and tingling in my hands, feet and face. I have been told that I may have these symptoms for 6-12 months or even some for the rest of my life. I guess that the good thing is, I was never intibated or confined to a wheelchair. I feel really fortunate in that respect.
I write to you today from my home. It is June 24, 2008 and I am still in recovery. I have not gone back to work and understand that my job is there for when I do go back. We will see about that. It was a very high stress job and I believe that the reason that I contracted the awful thing was from very high stress and a cold. I am now very afraid to get a cold or any kind of routine sickness for that matter. I am sorry that you contracted this terrible thing again. I could not believe it if it happened again.
I guess that I am writing this as I am so glad to know that there are others out there that have gone through the same things that I have. It is a very lonely illness as you do not run into many people that have had it or know what it is.
I hope that everything is better for you now. I just wanted you to know that I am out here.